September 24, 2012

  • How To Be Handicapped: A Primer

    I should preface this by saying I am not on any form of Government Assistance.

     

    That said, I should explain that it’s been over a decade since I had regular, full time work, that included any kind of benefits. I did apply for SSI about five years back, when I was less handicapped than I am now. I had spinal damage from two car accidents, but was rejected.

    Note: EVERYONE gets rejected the first time,.

    Since I have developed nerve damage, and something called compartment syndrome in my feet, making it difficult to walk most days. I am THRILLED when I can spend two hours on my feet…but usually that’s too much. It takes me a few days after that to recover enough to do more than make it to the bathroom. If you never had bone and nerve pain in your feet, you might think I was being a baby about it. It feels like someone is crushing the bones when you try to walk. I imagine if you drove a nail into your foot, you could duplicate the pain level.

    So it’s not that i am too proud for a minimum wage job…it’s more like most of them will not hire me. They have rules about employees sitting, you see. The other day, I was out with my daughter for two hours. The pain started, so I knew it was time to stop. But when we got home, it turns out that my friend’s horse had gotten loose…and was standing the middle of the road. I’ve fed him treats, so thank goodness, he came when I called…but it took more than a half hour for someone who KNEW how to handle horses to get there. The only way to keep him from the road was to block him…stand in front of him. My feet really hurt by the time they got there…but what choice did I have? If I had ignored it, for sure that horse would be dead…not to mention the poor bastard who hit him. But it didn’t make me more able. It took two days to recover from it…not to mention prednisone and pain killers.

     

    So when I say I can’t spend three hours on my feet, it’s not a guess.

    I’ve been applying for regular jobs—but quite frankly they DON’T hire people over 40. My brain works. I have awesome writing skills, can edit and proof read…BUT…I will be 52 in less than a week. Sure…there are laws against discrimination…but proving it is a cheap thrill.  The government even offers credits to companies that hire the handicapped…but most ignore it. So…that leaves me where?

    I can apply for government assistance…something I am loathe to do…but chances are good it will take YEARS to be approved. In the mean time, I need to pay for rent, food, gas…all those good things. I am in worse shape physically then I was five years ago.

    But I’m not dead. I’m also not one of Romney’s 47 percent. (See the first sentence.)

    So for those who hate and resent the “dependent”, I really need to ask you a question. What would you have us do? Do you favor the idea of putting us out on ice floes…so you won’t have to look at us? How ashamed do I have to feel, if I do ask for food stamps? Am i now infirm enough…or must I really be messing the bed to impress you? You say you don’t favor government “interference”, but since companies seem to have no problem abusing their workers without someone overseeing the process…what the HELL do you suggest?

    The whole “no sitting” policy is supposed to encourage workers to keep busy. But when you have someone like me who can’t stand? Is your answer that I am not qualified for the job? And if so, what about the companies who won’t hire people past a certain age? Simple answers usually come from simple minds. Complex questions rarely require a “just let the air out of the tires” solution. Oh…and you DO have a say. But ignoring the situation is not an option. If you think people like me are not “your problem”, you are basically saying we need to die…survival of the fittest, and all that. And you are entitled to your opinion, of course. But just be mindful that the same standard may be held to you…or someone you love. Someone else can decide that they are not “worthy”…and should be extinguished.

     

    As for me…I’d rather have a job, thanks. I would love to support myself, and not have to ask for a nickel from anyone. But walking…you’d be surprised how handy a skill that is. Today was a good day. I made it down the stairs and did my laundry. I am trying to be careful…just in case one of those resumes I sent out gives me a call. I am hoping they don’t hold my gray hair, or my limp against me. I am praying that my cane is not a huge turn off.  That is how you are handicapped…not by the limits of your own body, but by the bias of the people calling the shots.

     

    Welcome to my world…

Comments (11)

  • firstly, i am sorry you are in this position. i am definitely a wimp by comparison. you are amply endowed with inner strength and resolve. more than many. 

    yeah, employers or managers prefer you to be younger. having many years, in this culture, is a handicap in itself. 

    i’m on your side. you should get govt assistance, though you are loathe to. fuck you to those who might even consider putting you and others on ice floes. we all know who they are

    it makes me happy you’ve had a good day. 

    hugs, wonderful lady. 

    and yeah you sure can write

    i hope you find something soon. i know how this type of urgency feels

    oh btw, the checker at Lucky’s the other intimated to us that rather letting anyone go because they’re not turning as much profit, they, her co-workers, opted for reduced pay so nobody is let go

    this touched me

  • Hey you!

    Good to see you!
    I’m not whining…I have a few months before it gets dire…but i do wish people would get their heads out of their asses about the “47 percent”. I know of no one living high on the hog with government dole…

    And I hope you are well…you are missed!

  • I share your world, and all its frustrations.

    Great post.

  • If an employer has the ability to accommodate your disabilities, they have to do so.  Not hiring you is considered discrimination.  When I worked at an office supply store a few months ago, we hired in a 60-year-old man with MS — as a stocker, of all things.  We had to, because we could accommodate him.  And he was a damn fine worker, considering his limited mobility.  That same store had a strict no-hat policy.  When I told the lady interviewing me about my hair loss and asked if it would be a problem, she said she would hire me and let me wear a scarf anyway.  I would have grounds to sue if she didn’t.

    That being said, I feel like some sort of office job is more suited to you.  There generally isn’t much movement required from you, and you may even get to put your writing skills to work.  And I feel you on the government assistance.  I can’t wait till I can get to a place where I don’t need food stamps or a medical card for my boy.

  • Well said, lady! I feel for you in the situation that you are in and know how miserable it is to not be able to work, but worse than that it would be awful to feel bad all the time. When your body is unable to keep up with your spirit, your spirit suffers for it. I wish I had an answer, but the best I can do is vote Obama.

  • @galadrial - 

     I know of no one living high on the hog with government dole…
    yet  they speak of it as if this is the case.  
    i have been not great. when i am like this i become anti-social. reason why i haven’t been really around. 
    great to see you too

  • I am 22 and a half years old today. I work retail…and I have CP, hydrocephalus, Chronic Fatigue Immune Deficiency Syndrome, fibromyalgia, and arthritis. I stand on my feet for anywhere from 8-13 hours a day…and am in excruciating pain the entire time. When I first got this job, I had never held a retail position before. I also hadn’t had a shunt revision in 2 years. I didn’t know what awaited me.

    With very few exceptions, I leave my job experiencing new levels of pain and fatigue every day. My bosses think I “handle it well” and am “too young” to experience so much pain (I almost died in 2011; most of it is PTSD-triggered). I have been laughed at. Thankfully, I still live at home with my mother…
    I understand and am sending HUGS!

  • @PhoenixFighting - Thank you. I recently set out on my own—which might seem crazy…but since I was not getting better, seemed like a good idea.

    It still does. Our disability also erodes relationships. If we are married, the vows say “for better or worse’…but it hurts you deep when you know that is the only thing keeping your spouse there…a promise they made long before they knew how bad it could get. You see in their eyes what they don’t say…or don’t

    USUALLY

    say out loud…and after a while you just decide you are better off alone.

  • i can’t imagine what you deal with each day in terms of pain. 

    the irony is you have so much more to offer than people who make this world worse but in their minds believe they are almighty because they only give a shit about themselves and consider anyone who could use a hand a moocher. the U.S. is not the place for those people. Somalia would better suit their mindset. i’ve not seen an America so cold-hearted as the America controlled in Congress by the tea party.  it’s often said you only see the true character of people when times are tough. it’s when times are tough that the screw you i’ve got mine people show their colors. 

  • @TheSutraDude - Well…for me the disability was sort of a wake up call. I started working with special needs kids about nine years back…after I learned my first (but not my last lessons). I found out that whining about my “lot” was stupid. These kids were amazing, They tried…even after people told them they wouldn’t ever be anything. Who was I to give up? Yes, I lost a lot…but I had it to begin with.

    I think of them when it really gets to me…and it keeps me going.

  • @galadrial - that’s great. we should all have courageous kids like that in our lives. to me America was a country with a big heart, not a miserly heart as some are trying to turn it into. 

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